My Kids, Myself, Special Needs, Uncategorized
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Apraxia Awareness Day

So today is the first ever National Apraxia Awareness Day.

This is pretty great, since lots of folks don’t know what Apraxia is.  If you have never heard the term before, it is speech disorder, or disability, that is characterized by speech motor control impairment.  So, a child with apraxia of speech may know the words they want to say, but cannot control the articulators necessary to produce the sounds.  It is one of the most challenging speech disorders to treat and overcome.

Here’s what I want you to know about Childhood Apraxia of Speech:

Children with CAS are SMART.  They usually have at least average and much of the time, above average, IQs.

Children with CAS UNDERSTAND everything you say.  It is not a problem with language cognition.

Children with CAS, and speech disorders in general are often bullied for being perceived as “dumb”, or different.  They know they are different, and can suffer from low self-esteem.

Children with CAS have to find alternate ways to communicate and are CREATIVE.

Children with CAS are PERSISTENT.

Children with CAS are STRONG.

Families who have a child with CAS often face great challenges.  It is immensely frustrating for both children and parents to deal with an inability to communicate.  It can be a great emotional strain on parents who wonder what the long-term prognosis is for their child, who wonder if they did something to cause their child’s disability, and who deeply long to hear their child’s voice and thoughts and feelings.  Families with an apraxic child often have a difficult time receiving diagnosis, and then navigating the world of information and therapy.  Treatment for a child with CAS is intense and time-consuming and expensive and can place a great deal of strain on a family’s  relationships and budget.

I’ve met some of the strongest, most tenacious, most loving parents and children with Apraxia since we received our diagnosis.  Families with CAS want you to know more about it, and to acknowledge that their children are fighters, and really special kids.

Here is a link to CASANA, the Childhood Apraxia of Speech Association of North America. Please check out the site to learn more about this unique disorder.

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